First grader Stella is shining brightly at Irene Reither Elementary, despite the challenges of cerebral palsy. Her mother, Kara Goff, recently emphasized the importance of inclusion, understanding and community support. Kara advocates for curiosity and engagement rather than avoidance. “People often feel accepting but avoid engaging with people with disabilities,” she explains. “We want people to ask questions and understand that every child is different.”
Stella’s classroom is centered on inclusion, thanks to her teachers who encourage questions about her. This approach creates a culture of understanding and acceptance, allowing students to see Stella as just another classmate. “It’s about creating an environment where kids can ask questions and learn,” Kara says.
Getting Stella to school each day involves significant logistical demands, including equipment, medications and food. Unlike parents of typical children, Kara carries an additional layer of stress and worry. “Other parents can drop their kids off and say, ‘Have a great day.’ For us, it’s not that simple,” she explains.
IRE provides a paraeducator who knows Stella well, which helps alleviate some of the stress. “Having a paraeducator who understands Stella’s needs lifts a lot of the burden,” Kara says.
Accessibility is another major concern, with limited wheelchair ramp parking and the need for specialized equipment. “Sometimes there’s no parking space, and I have to wait in the middle of the parking lot,” Kara says.
Despite these challenges, Stella’s joy is evident in her favorite activities. She loves music, especially Elmo and Mickey Mouse songs, and lights up during sensory videos. Swimming is another favorite activity, thanks to a specialized float.
At school, Stella has dedicated time to practice using an Augmentative and Alternative Communication (AAC) device (photo 2), which supports individuals with speech or communication challenges. This device tracks her eye movements, allowing Stella to make music for fun and select words to communicate.
Kara highlights the importance of awareness and education, sharing information throughout the year to help others understand Stella. Stella’s sister, Eva, also plays a crucial role, advocating for Stella and helping her connect with peers. “Stella loves being around kids and the chaos of the classroom. This makes her very happy,” Kara shares.
Through the combined efforts of her family, teachers and classmates, Stella thrives in an environment that embraces her differences and celebrates her strengths. Her journey reminds us of the importance of inclusion and its positive impact on everyone involved.
World Cerebral Palsy Day is celebrated every year on Oct. 6. It aims to raise awareness and honor the lives of those with cerebral palsy (CP). This day also serves as a platform to advocate for their rights and work towards a more accessible future for everyone. Thank you to the Goff family for sharing your story and your continued advocacy!